The Zebra & The Bear Film

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Filmed over seven years, The Zebra & The Bear is a documentary film about how a mother’s fierce determination to save her daughter from a devastating ultra-rare disease leads her on a journey to raise millions of dollars and drive the development of a pioneering gene-therapy treatment.

INTERESTED in hosting YOUR OWN SCREENING?

Leverage the power of THE ZEBRA & THE BEAR to serve as a tool to support your work and mission, and let's support the families dealing with rare disease, together.

Share your screening ideas with our film team & learn about pricing options. Learn more below or email ROCO Films at zebraandbear@rocofilms.com.

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Partner With us

Learn how to partner with "The Zebra & The Bear" Film Team to spark meaningful change in the perceptions around rare disease, how rare disease therapies are developed, and most importantly, how we might ease pain for the families dealing with rare diseases.

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audience reactions

"Shed light on the huge gap in rare disease treatments."

Laura, Genetic Counselor

"Inspirational."

Gina, Researcher

“A story about love, commitment, family and compassion.”

Preview Audience Member

"Willow's mother takes us through the unimaginable trials required to improve her daughter's chances of survival."

Hans C. Andersson, MD, FACMG Director, Hayward Genetics Center Tulane University Medical Center

“This is hard, but I'm glad you're including this. No one ever talks about the strains on the family. I've known so many rare disease couples that divorce.”

Dr. Steven Gray, UT Southwestern Medical Center

“I’m in tears… a powerful witness to a mother’s commitment to finding a cure as a part of her daughter’s legacy.”

Preview Audience Member

“Heart-wrenching and heart-warming… beautifully told.”

Michelle, Genetic Counselor

“...Beautiful, cutting, important. Could not look away, except to find tissues.”

Laura, Parent

“Impactful, heartbreaking, eye opening, heroic, brave, the tale of a mother on a mission”

Carolina, Parent

“Moving. Heartbreaking. Hopeful. Real. I will feel the impact forever.”

Leslie, Audience Member

“"I need to do all I can." - Amber Olsen, And she did just that! Moving. Rare Resilience.”

Dona, Parent

In the world of rare disease, nothing is more powerful than a mother's love.

Join us

For updates on The Zebra and the Bear, including information on the film’s release and ways you can join our efforts to spark positive change in the lives of families dealing with rare disease, please add your email address below.